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This event, featuring some of Nottingham's finest musicians and DJ's, is to raise funds for my friend Katie's little boy Alfie. Alfie has a rare genetic condition called MECP2 Duplication Syndrome which is caused by a second copy of the gene MECP2 and usually affects little boys.
These boys struggle from an early age, with developmental delay, very little or no speech, floppiness, immobility, difficulties with feeding, seizures, and compromised immune functioning.
But recent research shows that there is great promise for curing MECP2 Duplication Syndrome. Due to the straightforward genetic mutation which causes the syndrome, it is a first-line target for gene therapy.
All funds from the show will go to: https://www.justgiving.com/fundraising/alfies-dream which supports MECP2 Duplication Fund run by Reverse Rett. Read more about it at: